My Book so far.
Chapter One
My Perception of Life
Firstly there's a random fact about myself that everyone should know, before I introduce myself officially, which has to be the fact that I have an obsessional thing about the colour Red, always have done since growing up, I just love it, people would ask me what colour of something I wanted throughout my childhood days and I would always give the same reply, Red, I don't know what I would have done if I was colour blind because most people with colour blindness lack the ability of seeing two colours, one of which being Red and the other Green, that's why there's glasses, often Purple in colour that people with Colour Blindness can use when they drive Cars, if required to support them in some way with the aid of ability of seeing Traffic Lights or for the Hazard Perception, Driving Theory and practical Tests, as well as general post Test Driving,, in the respect of Road Sign obstructions with Signs that are Red or Green that shouldn't be obstructive sample being , the No Entry Sign and things of that Nature like Occupations out at Sea, which may otherwise be an underlined, complex aspect to Overcome, whether or not that comes under the Motability Scheme, I as a person wouldn't know but obviously feel free to find out if you wish.
Essentially, I’d like to introduce myself as, Marie Johnson. Here is an insight into my very jam-packed and altogether busy everyday life from a perceptional point of view and this is cogent proof of that, a cogent being a clear presentation.
I am well known by people for having very strong characteristics, as you will find out whilst reading this book.
I am evidently someone who has very strong opinionated views with a hint of being obdurate at times so not willing to change where I feel it’s needed or right however not always , with respect to the way that I personally perceive my own life in general as a person, who lives my life positively, on a day to day basis, facing non- stop physical challenges ,in a sanguine respect, meaning to make the best out of what some might call a difficult situation as a result to a disability that is birth related.
Being obdurate in some respects isn’t nice and I know that but situation depending in others it is because I think people know where they stand and respect a bit more somehow if for good reason , which can happen rather than people going along with something just to go along with it you will eventually find out right from wrong anyway so why not challenge it not to a gigantic Degree and to the point of dislike and or any damage as that’s not okay but just a touch ,I won’t be dishonest as that’s who I am, if anyone is like it ,they are but if they are not ,they are not .
My disability is known as Cerebral Palsy and can be abbreviated as CP for short.
Startal Reflex issues are Key factors of CP, among others that you'll discover, whilst you continue Reading, Startal Reflex issues basically affect people in the respect of their physical control of jumping when any sudden unexpected sounds have been made or stat happening, such as Fireworks being set off, this tends to also send people who have Cp into Muscle Spasms and tense up, which for some people can take time to relax and come out of depending on the individuals, generally.
Cerebral Palsy is a disability that can have an enormous impact on several people in numerous different ways, depending on the severity of the disability due to the simple fact that there are hundreds of different variations. The type of Cerebral Palsy that I have is known as quadriplegic, this affects me primarily in all four limbs and also can be defined as a form of injury to the part of the Brain, used to distinguish differences between messages passed around the human body. This is where the growth motor functional issues come in. Growth motor functional issues are basically to do with the way the brain works in relation to movement for anyone that may be wondering.
The Cerebral Palsy was more than likely in my case to be partly a result of Hospital staff’s negligence, plus the fact that I was born in an less than full term pregnancy of twenty-seven weeks prematurely, also I was breech and had a suspected brain haemorrhage, plus the umbilical cord was wrapped around my neck.
I am only affected physically by the disability but in lots of cases this will more than likely result in very different circumstances unfortunately. In fact, I think of myself as being nothing but extremely lucky that I’m not any worse in the way in which I as a person am affected. Some people might say that they do not understand why people are born with conditions, but I see it as a mitigating circumstance. There are some speculations as to whether it’s worth saving premature babies lives, due to what some people may see as births resulting in unnecessary and unfair consequences, plus the fact that they could cost the economy major funds in the long term. Which I have seen as evident proof now in adulthood in the form of a care system which thanks to a person called Wendy Mckenzie who is actually a care coordinator who (I have had in the past who has helped me in some areas) has made a lot of allowances for me. With the aid of permission from higher people in authorities to provide me with more availability in relation to a better quality of life thanks to Wendy the appropriate funding was granted.
Wendy if you are reading this, thank you for the overwhelming support that I have received from you in the past and we must keep in touch if you can.
My own disability wasn’t diagnosed properly as Cerebral Palsy until I was approximately a year of age. Up until this, it was becoming more and more obvious to various family members when I began not to reach some of the main milestones of the baby developmental stages of guideline recommendations for the age that I was at the time.
The over- all diagnostic period process, as you can imagine probably wasn’t easy for any of my family members especially my mum, to come to terms with, as I think is to be fully expected.
Aside from that aspect there is another aspect that is a little similar in a way but not quite. The separation of my parents who were married for 8 years due to differences, (I’m not able to discuss publicly in this format but I have a full understanding of why this happened) but it’s still not a nice thing to have to deal with at the best of times. However, I am lucky enough to be able to remember a lot of the good times when we were a full blooded four family unit. I can say that I was lucky enough in some respects to have a dad that has been in the marines previously, Dad provided us with a lot of privileges, that a lot of average people haven’t experienced. Such as having dinner on The Royal Yacht Britannia the queens ship before it was Decommissioned in the year of 1997, which I fully remember as being quite a regular thing for us, as like a lot of people with family in the marines you get privileges such as the above. The last piece of music ever played on the Britannia, which the queen shed a tear to was 'Highland Cathedral' which was played by marines at the time.
Coincidently though, at this point of my life I think it’s because my dad wasn’t around very much due to work commitments ect; I as a person wouldn’t really attach myself to him as much as I did with my mum which I think was primarily due to the reasonings why I spent probably more time with my mum, so I was evidently used to it more.
Following the relationship with my dad, mum went into another one and ended up having two more children which I guess was the only good aspect of it, as I wanted mum to have more children anyway whilst I was growing up. I nowadays have a really strong relationship with the later additions which are the girls well and little cute River who I totally just love and have a special little Bond with ,she is the world’s biggest Teletubbies and In the Night Garden fan to Date for a little person ,I watch it with her and ,oh Mr tumble ,she loves watching them all with all of her Three Aunties but mostly me because She’s good at her little Baby Chat thing with me , so without my parents separation beforehand, I guess that would have never happened like that unless it is just luck. The relationship between me and the girls is continuing to grow over the years because I have similar outlooks on life to them and I think personally I can say that’s why it has happened in this way but the person in question has his good qualities, too, don't get me wrong, like He'll go to the Shop for me, should there be challenging times ahead and come back with anything of the Red Food and Drink types possible to think of, due to him having the knowledge that I like the Colour Red, which I know I was speaking about previously but there's some additional information for everyone's Reading.
I now continue speaking to my sister’s, quickly in the upcoming written Paragraphs, Read on and the connections should hopefully make sense.
Whilst i think about it, Izzy thank you for getting my random Eye Lashes out of my Eyes because that can't be a nice job for you but i guess that, that's all part of having a big Sister like myself, you lucky thing, no I am only joking with that side of things but I love you and Elise loads and I love every little thing about being the big Sister to you both, as you're both pleasures to be around and lastly keep up the Educational Academic Ethics please for me, thank you Girls.
It's a bit Premature but I just want to wish my sister, Izzy the best of luck with her upcoming American Adventuress and I hope that she has an amazing time but I will miss her loads again as you know, Izzy as I have also written this on one of my Social Network Sites.
Shortly after being diagnosed with Cerebral Palsy, I began to receive regular input from Medical Professionals e.g. Physiotherapists, Health visitor, occupational therapists and not forgetting an Educational Psychologist. All of the input enforced was to try to rehabilitate me as much as possible. To enable me, both physically and mentally to live a fully active, action packed but regular life despite my obvious growth motor functional issues, which I have been in lots of ways successfully able to accomplish in my own way.
Some of the medical input took place consistently on a daily basis particularly the Physio input, this is something that is a largely opinionated issue, this is because some physios have views that it should stop all together unless; you’re in pain, after a certain amount of time or have mental health issues. This is normally when they think that a person has stopped growing because the body stays at a certain ability at that point, which I personally think is wrong after being told later in life by different people and professionals, that people with my condition don’t stop growing till a lot later. Coincidently mine has been restarted again a few times after 7 years of nothing. It went to every week again just because I ended up later with different physios (Penny Martin ect), who have a completely different approach to some, mentioning no names apart from the one I have permission from, this is still set to re-continue at the point of life I’m now at.
Penny Martin and Work Colleagues gave me some support with Circular Respirational Pattern Percussion Physio, Diaphragmatic Spasm type issue work , this was basically because when I speak it takes a lot of physical control and I am usually someone who tends to have passive breathing control otherwise and can if not thinking hard enough, talk on one Breath of about 3 seconds, which sometimes makes my speech sound shallow and quiet at times, the proof being that if and when I need to say something more than once it’s probably easier to understand what I've said the second time or so on because by, which time I'd have thought about it more, done something about it to regulate it in whatever way works for it then to become more clear basically I give myself a lack of air between speaking time because I focus on the getting what I want to say out quick, rather than the between speaking Breathing control space time required just being honest because I've got no issues with being honest with people about it , I'm not going into why or how it works the way it does because its all technical and reading it for some of you would probably be like watching Paint dry, lots be truthfully honest but anyway it works with structured strategies to expand capacity and helps with my sometimes difficult to control, random laughter that I get at times and I was previously, wrongly given a Voice Amp, which was no help towards the issue, as I became physically reliant on it and so basically my quietness was made worse through using it so decided to ditch it, as that was advice given and find that Monotone singular speech some people grasp quicker and with more ease or maybe even backgrounds if I make it known just to be clarifying the final spoken word if the sound levels do change, I would also never have even thought to use a Light Writer with Switch Access for Communication on the Telephone only as that’s sometimes also difficult to grasp for some people , In addition to this the Hydro and additional Muscle Stretches, which with Penny and the Team I loved, which should have been taking place anyway I think , which you can read more about in the Paragraphs that follow, once I have said that Hydro is basically a form of passive Swimming, which I have to say is different in good and nice respects but also shocking because it’s not usual with the Physios who do more than just the in the Pool aspects working more in the what I say is the everyday type fields, which was anything from Undressing, using Showers and Toilets if needed , Hoisting and Dressing people so basically Anything personal Care like and also advice is given, whilst doing so lots of the actions written previously which, I as a person use to product myself nowadays ,such as the Right Arm ,Head ,Let Arm Dressing way being more Spasm Tone [ Clonus ] friendly ,meaning that it I have more control of my left Arm to then push it through my Tops and things but that may be shock to some people because the Right side looks to be the one that is more able to stretch when ,no actually not all that is ,is my Strong Spasticular Tone pulling against type force normally likes to flex well but constriction and or Elongation is always better so it’s always good to try and help stop the contracting when doing so just a tad.
Unfortunately, the same can't be said about the additional Neater Eater Food Aid support once productive, however its totally out of my hands but that's down to an underlined funds issue anyway I think or so I'm told.
When I was younger, this was basically a mixture of both passive and intensive muscle stretches and sufficient general body alignment assistance as well as various different conductive education centre programmes such as the Bobath Centre situated in London and Robert Henryson in Scotland. I also attended the Rainbow Centre in Hampshire for a few years, however I personally feel that the Bobath Centre was probably the program that was more beneficial to me as a person with highly complex needs. Plus the fact that I got on really well with Jane who was the main physio that I had working with me whilst I was there, and obviously Penny Martin from a different area that I have just mentioned. The conductive side of Rainbow Picture Institution had different approaches again. It isn’t always the right approach depending on the individuality of the person because it works in a different way to some, then it does with others. I know this through personal experience.
I am probably someone who given the right physical support that would be able to talk people through the aspect of Physio, should i feel the need, or a good time is if and when people's Muscle spasms start as I have done it myself with non-Physio people and with Physio people at times years ago but something tells me I'd still remember a lot, provided the physical support aids are physically strong people, as basically they just use one Hand to support the ankle and heal and with the other hand support the knee, whilst exterd and flex slow Movements are made, once exteded hold the posture for a number of seconds for a basic Hamstring Hip to Knee level Muscle Physio stretch, keeping as much Midline or Neutral posture, Neutral posture being 90 Degrees, as much as is physically possible , I say this because different people's' Movement Range's are different so neutral basically is a guideline, Physio's advise people to follow them usually, although as evident proof of what's written in this Book, people don't always have too, people also have to be aware of the differences between pulling and painful with the advice being pulling is acceptable, painful or feeling and or being sick from it is not so stop at or before that point, as damage could otherwise be done but quantities will also be different for individuals but usually the holds are for around 30 seconds to feel it stretching , oh and it can be done both on a Bed or in a Chair for example, people may wish to sensibly make some up in a fashion, which could also work at times I can ensure that there are differences between giving someone Physio support aid and Restraining them, as some may say that there's possible fine line crossings going on between the two actions, there for I just wanted to clear up such factors with Readers. In addition to the Hamstring Stretch, there's also the Abduction to Adduction, which is near to being the same but using side to side Movements of Muscles, which again is easy enough with a strong person support Aid. The same can work with other Limbs, likewise.
I will always be open and happy to follow this through, as and when myself or others see the appropriate need by the way, just as some additional information, as well as having written it to help others, I'd rather be having some than None so should never really be discouraged by or two anyone.
PMPs need placing, and assessments done at regular times by the highly trained people like Penny really that can support people with what is advised and right for them as is a big issue for many.
I feel that my disability has never had anything but positive vibes, as such even through periods of time like under- going four major operations. These times are sometimes hard but aside from that, lessons can always be learnt. Lessons I have learnt throughout the whole surgery experience are, that there are never any guaranteed success rates. Plus, the fact that I think I know myself better than Doctors do theoretically anyway, aside from Martin Gough who was and probably still would be an enormous exception in more ways than one.
Martin Gough was my second orthopaedic paediatric specialist, after getting a second opinion on my hip because my previous specialist was disrespectful towards both me and my family members and his attitude was totally unnecessary and unacceptable. Martin, himself, could not be any more different towards the whole situation in general because as soon as I was under him, I became more involved in all aspects of consultations and decision making. I did this by primarily writing questions down on a big piece of paper for him to read and then he would feed back to me when he had the appropriate answer, that way it become easier for me to differentiate the positive aspects with the negative.
With Martin being a paediatric he has however said that he would keep me on the books anyway, even when I get to adulthood just because he got to know me and I got to know him really well. He also didn’t really want me to have to go through all the changes of it all again should I need to go see him again for anything of that nature but whether that’s still the case I don’t know. I’m assuming it would be if retiring hasn’t occurred yet, which I don't think that it has as I have previously Googled it and checked it just for future references, it has still been coming up as a search for anyone that wants to know for any unapparent reason.
The first two operations that I underwent were squint corrections and the other two were total hip reconstructions on my right side.
My hamstrings and calf muscles were also operated on at the same time as the second reconstruction took place, as were a lot of my friends at the same time.
The recovery time period was fun as I was in gaiters and pink plaster, (which was meant to be red ones because there was 3 of us that had the same operation done, we all wanted red ones I had to stick with pink), for around six to eight weeks in total. Later I then had a back slab on which is not a full one but is as cumbersome as one, I just didn’t have it on as long because I was at stage 2 of it all at that point.
The squint corrections were more of a cosmetic issue as opposed to visual issue as is common with the condition that I have.
My hip reconstructions were a result of a dislocation that suddenly began happening over a long time period. I’m amazingly not in any form of pain though, which touch wood has always been the case, fortunately for me, as I have a tendency to be unexpectedly and unpredictably unique, in a positive way from others in a situation like this. Normally it’s a 50/50 pain rate with the situation that I am in, so I am lucky in that respect as well.
As my right hip began to dislocate, or sublux itself in medical terminology, it was also discovered that scoliosis, which is a curvature of the spine, was developing as a direct result which apparently is common knowledge to most specialists in people with my condition.
Since writing the above I have been back in touch to discuss options to give me more Physical support to aid a more independent lifestyle for myself so I am extremely grateful to the same person for the agreement to even see me again soon but I will be honest and say that my original thought going through my Head was ,18 years later or down the line will I won’t I get a response but sure enough yes I did and an amazingly quick and really nice one at that .I can now confirm that my Medical Status is much the same as it was 18 years ago and positivity and nothing but that was the outcome so the latest visit was a well worth it ,amazing and lovely professional experience with a top specialist who remains a complete pleasure to see, thank you again for advice of brilliants and time given once again from the latest consultation. And on a semi personal level kind of but highly professional with it and fully using person centre care skills throughout.
I will do my upmost to continue conducting myself with the full support from the man himself and the people around me to the best possible of my full potential and abilities without too much fixture, just as proof that I have fully taken a Mental Note of what’s been advised with advised being a big Key word just an added little snuck in statement from me and others.
My current Specialist for something else have much the same methods of practice so although my issue hasn't been great I, too have kind of liked let's say as it' s for personal reasons in a professional approach way needing to be under them for treatment Cefalexsin is good stuff.
Previously I also had a Orthodontic accident of which I won’t go into .too many details to subtract Gore levels because it wasn’t great and there was just Blood everywhere and I had Tran Tracks in for a longer time span that actually if I’m honest I detested and wasn’t my choice , however the thing was a barrier for Teeth coming out in the end, just a touch Grey but it’s not something that worries me and it really isn’t as and it’s cosmetic but the people had good people skills, obviously that’s perceptional with others but that’s fine if we all agreed on everything it wouldn’t be right as in the cosmetic aspects .
Throughout my life I have overcome and achieved a lot, some of which has been done over both a large and short time span, which I feel is all down to the simple fact that I have lots of patience and determination that I have somehow acquired.
My ability to achieve things comes from my over- all sunny outlook in general, I also think that my personality reflects widely with regards to all aspects of things and life generally.
Some of my recreational achievements are as follows; London Camp Weekends away with Family, Abseiling, Sailing , Rock-climbing, Skiing, Overcame pre holiday Passport issues, Horse Riding, Hand Gliding, Boccia (like bowls for anyone that doesn’t know), Concerts and Discos, unexpectedly different adventures on Public Transport with Ricky, swimming with dolphins ,Strode Park Visits, cruising around Norway, travelling to Germany, in which I have friends with benefits but not in usually defined way, meant as in we are friends with a strong friendship bond, they are currently living back out there and I just want to thank you for everything you've done with and for me, both as a support worker and friend, that's for one obviously but to all of the four for being such lovely people and friends and for generally making life happier and better for me and others like myself , not forgetting the lovely October 2016 visit that I didn't know a thing about and loved from you, lovely two days spent that was so an additional well done, congratulations and thank you for that. Some of the listed pastimes previous took place in activity centres including the Arethusa Centre in Rochester, West Kent, Likewise the Calvert trust in Exmore, Devon.
I am also a proud owner of a Ronald McDonald Child of Achievement award which I received in 1997. 1997 was not just a year for the Royal Britannia but also for me! The award was given in relation to the disability I've mentioned and my approach to the way I cope with living with it.
Something more random that I like is going to the perfume shop around my Birthday week or there abouts to buy a few months’ worth of French Chanel allure perfume, well let’s call it a years and it\ comes with quite a large price tag attachment to it but i happen to love the stuff .
In addition to this, I have also done the Ice Bucket Challenge which is an awareness for Motor Neurone Disease or ALS (American term for it). It is a debilitating condition which is neurological and effects the nervous system and brain. Hence the term, neurological as you will find out in due course whilst reading this book as the term itself will rearise. The Ice Bucket Challenge is basically what it says but is fun but at the same time you get a full-on insight as to life with the condition which I think is a good thing because there’s not much awareness on it out there. The ice itself hits the nerves in the same respect as the condition does; that's what the whole point of the challenge is.
Life is a subject that is often influenced by both the individual personal preferences of people with respect to their religion and beliefs, however due to the fact that I have my condition I personally cannot for the life of me positively see how there could be a God of any shape, form or description, this may also be because I personally think that the evolutional theory is more likely, because there is more theoretical evidence, such as; from animals.
My reasoning for thinking about the evolutional theory is because there are lots of similarities between the skeletal system of a Dinosaur and a human being and I'm guessing there's a difference in the number of Bones, a humans being 206 but aside from that I am also a little on the fence because there’s a very small but strong part of me that thinks that, maybe there is some form of spirit after death, not however convinced as to what form, likewise with mediums as such.
The Subjects of stem cell research and or Euthanasia are something that I, myself definitely don't agree with, even if they are two different things but are both along the same lines ,kind of so I decided to typically type about both in the same Paragraph, I think that original lives are far living under any circumstances unless people see it as a help cry, as some people do but if people think otherwise then that's fine by me, as I respect that people may have different views and that this can be a complex issue but have added it into the Equation anyway Quickly going back to the previous subject, as there's a little more to be said but hopefully you'll see where I’m coming from because basically I went back on myself for a second or to previous to the Euthanasia subject, which now follows as it should, provided that you understand my written logicalness, if that's not made up English Language, in fact probably what should have been written was, actually logic.
This is because some Christians and other religions believe that people with disabilities do something wrong in a previous life, but I don’t think that is necessarily true.
In my own opinion on living life, my message - as well as advice to people - would be just to live for the present day and not anything but the present otherwise life will be too short.
This is sort of where the educational psychologist input comes in, in a weird kind of way but not quite.
One thing that I would say to all readers is that an opinion isn’t a fact it is more like a theory that is often based on the basic knowledge or perception of one particular person.
This can sometimes be influenced by others depending on the stubbornness of a particular individual. On the other hand that is not always proven to
necessarily be the case because sometimes these can just be mapped out generally.
I, myself think, throughout my lifetime I have taken experiences from People that I have encountered, these have sometimes given me, yet more courage in my own life.
I have lost many my friends, which I think makes me more, like the way that I am, but I guess that’s part of life otherwise the world would simply become overpopulated to a manic degree.
One of my friends that I have lost ended up being more than just a friend in relationship terms (Sam) I think through being around him for that length of time that I was, has given me an even stronger outlook than I originally had myself, which is a good positive thing that I can say as a person who spent a lot of time with him. I also had conversations with his family members that has made me feel this way too, because all of this doesn’t come from out of the blue, technically it must come from somewhere, realistically speaking.
Also have other people that I look up to in the same way such as a little person called Jayden, which just in case anyone is wondering I’ve got permission to write about him in this book before obviously writing it, Jayden in some ways is a lot like me but different in his own individual way which basically goes with what I said about individuality with conditions that are physical and or otherwise in some cases but this is a field that people get to realise the differences of different people with the same type of thing, which when you think about it can be a highly complex issue depending on, again the individual views of people. Having met Jayden I just see him as basically another more than average individual and a fighter which also helps when living with any form of condition. Jayden himself is someone that is unique in a good way that I have had the pleasure of meeting just once but having said that if I get the opportunity to spend more time with him at some point then I would want too.
This might be a little random but I, speaking, as someone living with Cerebral Palsy that has been around Dogs for around Seven years of my life would give people my full advice in respect to getting Dogs or pets with mentally or physically challenged individuals in mind, this is because Pets often have a random ability to detect obvious differences so are, there for able to develop bonds of much greater quantities, than human beings can, to the point where you could, probably call it an additional type of therapy for people of this description as in calming ect. On the other hand it’s not just about having a pet because it can be a big responsibility but then again if there’s lots of people around then that isn’t an issue, dogs somehow have the ability to be able to let the owner have some awareness if something unusual is about to happen like for instance; there was a time when someone was in the garden and I was the only one down stairs, the rest of the family was upstairs as it was night time, one of the dogs started pacing round the floor like they do because obviously they could sense someone was outside although me being me just thought it was my younger brother who is from the same relationship as I was; Dad wise, just for anyone that wished to know. I just thought it was him coming in from a night out so thought nothing of it, the next morning though I mentioned it to mum and said, “did Lewis come in last night” and she just said “no, why, I don’t think so anyway but I will go and check” she come back downstairs a few minutes later and said “no, definitely not” so then I said, “you best go check outside because someone was out there, because they tried all the doors downstairs”, luckily they didn’t come in because all the doors were locked anyway, but I could of rung upstairs but didn’t because I didn’t want to wake up my other family members but mum said she heard the dogs barking so looked out the window and couldn’t see anyone, but I guess the dogs knew because they were going ballistic by the end of it but that’s just proof that they can sense more than what we can. Just as a little information there’s actually a charitable organisation that specifically trains dogs up to carry out everyday tasks for people that would otherwise be virtually impossible to carry out for the types of individuals mentioned above, e.g. loading and unloading washing machines and things like that called canine partners for independents they train from puppy age upwards. I know this because when I was in full time Education, they did workshops with the charity mentioned above; so, I have experienced it, for the information of all readers again just so you know that I am not making it up and it is a genuine named charitable organisation that are properly issued funds to enable to do the above with training purposes ect. The training takes place over a long time period to ensure that it is fully appropriate for the individual that they are trained up for officially because if any dog is incapable for any reason, then they can amend it in the quickest but most appropriate way possible. The equipment is obviously introduced to the dog beforehand if they have got any additional requirements that way, so that it is not really that unusual for the dogs. I think they might do cats as well but I'm not entirely sure how long that takes because generally dogs are cleverer in their abilities to understand instructions from individuals.
I think however the dogs have to be semi used to it to carry out commands because certain dogs, like mine will just sit there and look at you until they have had sufficient training, however the charity say they can work with any type of breed but until you see it I don't think you can never really tell and the ones I witnessed are golden retriever type dogs I'm guessing because my dogs are of a similar stature than it would be possible to train up but I've never really looked into it but I guess you could do at some point if you wanted but it is really expensive the overall funds are as follows, from training a puppy to partnering the puppy up with someone it costs £20,000.
Contact information attached http://c HYPERLINK "http://caninepartners.co.uk/" HYPERLINK "http://caninepartners.co.uk/" HYPERLINK "http://caninepartners.co.uk/" HYPERLINK "http://caninepartners.co.uk/" HYPERLINK "http://caninepartners.co.uk/" HYPERLINK "http://caninepartners.co.uk/" HYPERLINK "http://caninepartners.co.uk/"aninepartners.co.uk/
I am actually in contact with somebody that knows someone who works there so in actual fact, through myself getting this book written, without a clue of that factor, I may have found myself being a little more helpful than I first thought, which Has to be an additional positive for both the Dogs and staff connected, I trust that the individual from what's been said will know who they are, obviously without saying any names.
Time for a quick subject change, although my quick isn't always quick, however throughout the written process I have acknowledged the fact that I need to educate myself in saving the envioment in the format of Trees for the hard back format coppies, due to the quantities of diction used durring this chapter, meanwhile i came up with a plan to build myself a Site so I have done just that. with the Address being this, http://mariejohnson1987.wix.com/book, Being my logical self I used my knowledge of physically challenged people in the right way because another aspect of my thinking was the physical issue aspect of page turning, however there's specialist equipment designed to aid people with these such issues but like everything these come at high levels of fund quantities unless people who require the physical aspect of aid from them aie lucky enough to be able to splash the cash, big style in order to buy them, which circumstance depending may or may not be possible., whilst I'm on the subject of Book formats, there's a subject that may or may not be an issue for some Readers, the subject of Font,Sizes, Font colours and Type Faces, due to special physical challenging requirements, examples being Yellow Text on Black Backgrounds or the other way around, which I doubt is something that Publishers take into account because whilst going through the written stages quickly became aware that the requested Format by most Publishers is, actually Times New Roman in English but as you can probably tell I've been different but there's knowledge behind as to why so hopefully over time things may change, a little but as I say only time will tell, besides all can be changed if not accepted for Publishing but what I will say just for the information is that the original format was a script looking Font, size 11, Languages English and German , should I have to change if before anyone Reads it.
Having just spoken about the format side of this Book, I can now go on to say something in the respect to the way that I am physically able to process this information written in this Book in the typing format that you as Readers are able to see, well basically I, as a person use something known as Sensory Software, which is an Emulator of a Qwerty Keyboard, which is set up in different ways for different users but I use it by clicking in individual letters with the aid of Two Switches and a Mouse Emulator Joystick used to control my Wheelchair because I'm a Powerd Wheelchair user again due to Growth Motor Functional issues before getting the Wheelchair I was just using a Blue, Maclaren Push Chair to get transported everywhere and was using an additional Red Posture support Chair for PC Access, things change over time so I went from that using my Wheelchair , oh and the Keyboard has a six word function with a outlined Red Box around them to save time factors, which can otherwise be a slow process, which is fine because if and when I use a regular Qwerty with the Sticky Keys function to help stop unwanted Key presses if I was to Spasm and have a finger slip or hold a Key down for long time spans and also saves the Backspace Key from having to be used quite as much but it takes me, i don't know probably 5 Hours or more to Type 7 or so lines with support from some Dycem Non slip Mat stuff placed on a Wheelchair Tray so that's basically why I use Software for people with complex needs because in general Hours worth of time gets saved by me using it, oh you another thing about the Qwerty that some Readers may not be aware of is How a qwerty acquired its name, well the answer being this, aside from the Function and Number Keys, the first Keys you come to are, actually Q W E R TY, I'm sticking Some Information Communication Technology information in there, as proof of having full range of Mental Capacity, which is needed to be a user of my Software in the way that's written previously but generally Criteria Levels may also help matters a tad, thinking about it .having Academically Accomplishied Achievements of Vocational/ Practical Qualification., thanks to being statemented, which gave me the PC set up up support required to aid me to do so, which is otherwise hard to get but once its done the support is basically with you throughout life at times when needed, however I over the years have decided that I wish to no longer continue with being a Student, as enough is enough and if somebody isn't fully cut out for a particular thing day in day out there is no point, what so ever in following though with things though without a feeling of success and enjoyment because life should never be about unhappy people, lets face the facts so that's a sign for changes needing to take place, which is what was happening over time with myself so I basically took action but obviously there's always open Doors, i guess.
Just noticed a little Design issue with the previously talked about Software, the issue being the Caps Lock Key, turning Green when its clicked, which if someone's got Colour Blindness issues, again is not helpful, likewise another issue is that if one day a user thinks, oh I need to input additional keys to access something, well that's out of the question without support of others, as the settings grid doesn't dock with the Keyboard Grid that you want to work with, as the two together crash silly but true, This has now been passed on to people in communications with the actual Software companies so the issues may no longer be issues soon or again as with the others previously written about, that's what my personal hopes are.
The other thing being looked into at the moment is for me not to in isolation from the outside world of an Evening time, thanks to my complex Support Needs Requirement Levels, which is all well and good until you get someone like myself who is completely understanding and accept worthy I’d like to think anyway by now of why things take place in the way that they do with only a small Pay for the time amounts they give and levels of Care support with outstanding kindness levels , amazingly good people anyway and I have written that as a massively big quoted statement, okay before anyone starts getting the wrong stick end but and this a but I’m of a youngish age and still want to be the same Social and outgoing person that I am more than well known by plenty for being during Daylight Hours, after Dusk, which I’m told by the relevant people is going semi to plan within funding availabilities in the respect to ordering of Equipment and things of which I have some agreement already issued so should be getting Bedroom PC Access soon and see some positively good changes being actioned so that everyone, hopefully is then satisfaction happy.
in addition to the Information Communication Technology knowledge, i somehow have random knowledge that I, as a person will never need to use, such as History of the King Henry viii's Six wives of Three Catherine's, Two Anne's and One Jane and also knowledge of Things like Astronomical aspects of the Planets of the Solar System, which for your information are, Mercury, Venus, Earth, Mars, Jupiter, Saturn, Uranus, Neptune and sometimes Pluto, should anyone need it it’s been written , however I did say that it was random.
Still on randomness subject another one being seahorses male pregnancies which to me seems to be a bit obscurer but it is true anyway.
Just quickly, the way forward if any of you have general worries about anyone lacking possible Developmental abilities would be to, sit the person down on one to one and say to them something like Can you Write something about yourself for me please? Obviously without telling them what its for because whatever the outcome, you will end up with something that shower where the abilities lack, which could be Paragraph Formations for example and using punctuation, conjunctions, Phonemes or spellings, once you have that Information contact the LEA and say I have carried out such and such with this person and to my knowledge of my findings there are issues with these fields of Developmental ability, there for I request full psychological educational evaluation please and take it from there.
Mental Capacity technically enables people to generally get success out of life in respect of abilities to decide things and process and evaluate them without aid of others, unless the best interest decision making side of things starts coming into play when needed , which then gets more complex because within best interest decision making, there're very fine boundary lines, which can become challenge proof if and overstepping Has taken place at times but less technically it is needed when anything practical is Achieved, although some people tend to lack abilities of following the Criteria and more Training is required, which is something that I, as a person have picked up on over time with no upset meant, obviously as that, again is just a perception view point of my own so, once again there's going to be people that will think otherwise and that's okay with me.
in some situations decisions may also need to go to probate services for Review of the final ,final decision making , likewise.
I am someone who finds it interesting how some of the general public react to people who are physically affected by Disability, as some people's perceptions show that Mental Capacity can be wrongly over looked ,in egregious ways, particularly if the general public see the person out with someone without a Disability, and talk over the person that is disabled but has no Mental capacity problem and yet some people speak in Baby speak like this, Can you see the Doggy? It’s like, well no but I can see the Dog thank you, that's an example of the things that I am talking about and another one would be something like, Does she want this, it’s like well ask me and you will find out that I'm able to speak and tell you myself, thank you but the best way around anything like that is to just take it and not worry about and think, well Perceptions are Perceptions so, so what and so be it and or just laugh, others may be fine from the word go without acceptance issues, what so ever and in general show full respect for people in every little aspect possible , Such as people like my Friends from Germany, Numb Nuts, Ali Poole, The people of Safe Choice Current and original people ,I am talking about and some of Nurse Plus when they don’t ask me if I have had a had a nice little Wee, now a joking thing between Myself and some people and not forgetting The K CC, ESW Team, , as it's people like this when people tend to overcome Perception issues Head on, due to their day in day out lines of Occupations, you'll know who you all are but I just want to thank you all for the positiveness, kindness caringness, Socialness, friendships and most of all time, as life wouldn't be the same without countless support from all of you at different times of life, however you all need Medals for the levels of support you give, I feel, as I don't care what some people say it takes more than random people from anywhere to do what's required within all of your lines of Occupations because an outstanding level of quantities of the qualities previously written above are often much needed, which evidently all of you have, that's why you all stand out, having said that's nothing to Indefinitely you included as unfortunately some of whom I’ve now moved on from through one thing or another and life goes on but for all of you previous you lucky people will always stick in Mind .Thanks America ,too for all the added Extras that you did and also for the agreement of the above written Text
Safe Choice, If ever you Read this, you can work out ,which parts of what I have said are relevant as a lot of past tense has been Typed or otherwise I will just very quickly say, Well Done and Thank you for the support as ever and a joke Note or two added to keep Cups topped up and keep someone’s Tech Goats happy please and yes I know about them ,I think that they are highly funny.
Now I add that because things are never set in stone and subject to differ quite a bit with subjects like this, I am again set to move on soon Care System wise as have obviously I have done many times. I have had highs and lows along the way little did I know that between transitioning for the 13th time that there was to be a Lock Down gap for Covid 19 after a week and a day of meeting people ,however I have since joined again and I am very happy and there’s since been another Two Lock Down’s since March 20,20 so I have just continued all the support throughout these last Two with and from the Company During this time I have exposed myself to Lateral Flow Testing for the safety of myself and others as had what was a cold because tested Negatively but all adds to experience of Lockdowns also having fond another P T Elongation, Functional Skills and Contract Relax wise ,who I won't Name but has worked with me in a positive and professional way, throughout so I as a person haven't looked back since because the impact has been greatly helpful and I know that I am probably one of the only people with that perception right now but it's been an absolute pleasurable time for me and at this point I should say Podiatry ,too. Well Done to people in Question and thank you
Special thanks also to Greg for taking on my package and for making my support times fun as with Finda Linish and many more of the Team and as moving on time arrives again, I take with me many Memories.
Whilst I'm on the same but different subject, Sophie, although we have gone down different paths nowadays, I feel it’s only right to thank you for the good times that we both had once upon a time, likewise please keep being good with Jayden, as I know that you will and as you can see, I have stayed completely true to my word and have written this whole paragraph to and for you, likewise I wanted to say a quick Hello to Daisy, hopefully you're not going to mind, as such.
Some people, however can generally be all of the above without having an Occupational Background, this was true of my friends Brother Michael who, let’s just say was another person who faced personal challenges on massive levels, although always found time to do nice Social things like have nice Chats and Actual consumption and food, Sausage Roils, Crisps and Pizza nights with me, usually around Christmas ,Easter or my Birthday Celebration times, which I will always remember as being good times and happy Memories of a man who i have respect after respect and lots more respect for and he was always joking around , R I P Michael Brown, definitely a privilege getting to know you and your lovely family, all of which are definitely far from being egregious people, egregious being the shocking Chocolate Teapot, unempirical type people is the way that I'd put it to people probably and I t think I'm going to leave you, as Readers to define egregious officially and more technically later if you wish, as its probably best kept, that way.
Thanks to the Brown family for the agreements to share the above obvious information in this public way. The last Paragraph written, i was told by the family that Michael Brown would have liked the prospect of being written in this Book anyway , that's just a little more information for everyone's Reading, if you can cope with Reading more, that is or I say that with risks of sounding repetitive in places and that's not a mick take out of anything like Dementia, it’s just my unique style of writing, that's all. Written abilities are obviously different in different people anyway, that's just a skill that people do or don't have and that is just life and process of thought can sometimes be missed by people so if written can bring out better understandings from person to person, which brings me onto the deep subject of Depression, which I, myself have overcome twice over time, which is something that is probably easter to snap out of as individuals, this is because it’s a Mental thought process illness and people have to want to make the full changes within themselves, as when people find themselves fighting it, nothing that others can do or say helps, basically being strong mentally is the only way out, Medical Support is often just a quick fix and a quick fix ,fix isn't always helpful, although it probably feels it at time. Quick fix just actions more complex worries, that's if the quick fix comes from the GP and in Pill antidepressant form, as Siff Post of antidepressant Pill Mental Training quite often needs to be put into action, as some Pills mess with minds meaning that eventually coming off them is often a challenging time for some people. Obviously if needed support is required to the GP, as is already semi written, I know but it’s probably the starter action plan to generally seek take. and product from on individual based levels again like past written about subjects throughout this life story. Some people may look back at life little deep subject aspects and think, well if the same deep subject aspects were to occur again would it be the same or would perception deep views will be different and perception deep views would be different, as obviously educational lesson in life help so to go through the same again would be a yes probably, as being mentally stronger makes for easier get outs, I'd say if your educational lesson factors are right in the first place speaking in logical ways again anyway otherwise everything written in this paragraph could well not be relevant. Brief back tracking on the medical implications of Depression and Anxiety because the physical Nauseous feeling aspects would be the components that I'd least wish to retrace if choice came anywhere into the equation, that is. At the end of day Perfectional views depending on a grateful sense of achievement could be brought to light out of such a deeply complexed subject. Having said that for some people a better way of doing the same thing could actualise themselves with sometimes reluctant change acceptance due to issues that maybe are difficult to confront so get pushed backwards in memories over time, which is what Bitmaps are sometimes used as aids or props for the aid support of production, although I, myself didn't need then again I wouldn't advise Information Technology methods as a quick fix production, i have already been explanatory so I'd say more explanations are pointless so where I will end this subject.
The change in myself since that time frame, well is obvious, I think is singular that I'd use as a quoted response statement self-evaluation reply, i think it would take a lot for me to go backwards again because my Mental evaluation skills of, myself are better than before everything tools placed or based thankfully now once again I'm living my same but different happy go lucky kind of life and so my life goes on, just as a small Paragraph add on.
Since moving on something tells me that in some respects on personal levels aspects at the time of being less selfish and more selfless, I wasn’t helpful to myself because people take advantages over emotionally weak people, not saying selfish is good under any circumstances but getting yourself to the right and nice quantity levels and making people like myself less likely to be challenged in negative ways with Bully Boy Tactics with differences of Abilities in Physical Disabilities, believe it or not that’s where the stem came from of where I once found myself and eventually pulled myself away from in my own time so a little turn around and yet still keeping yourself fully open to all available abilities of being who what and where you need to be to become both who and what I am today, all in all a strongly respect worthy type of person was and is always now going to me what I say to people as a good way of living a happy and altogether respect worthy type of life, in fact I didn’t quite plan to open up to such extremes but what’s done is done and its changes made for the better so I thought, well I may as well just go public with it not in full, obviously.
Anyway Enough said and written on that front before the big tangent writing ,Marie special thing starts unintentionally coming into play again ,although people like them and tell me that they are a great thing most of the time but I am not so sure, because I tend to type things like possibly possible rather than just possible still having the knowledge of that not being politically correct way to use the English Language .which i need to somehow program myself ,as by my own admissions it’s terrible but could where I juggle using multiple Brian power types ,one being the Growth Motor Functional power type and the other being Mental Capacity ,both of which have obvious links but at times focus can without realising it cannot coincide but rather switch between the two ,if this is again sounding repetitive than by no means is or was it meant to do so .
I, however think that more Written detail in Books is good because then Reading interests Rocket and stat expanding collectively as a whole because it brings people’s imaginations out really well and in a creative aspect way similar to the way that Music can do for some express wise a bit like Music when it means something but not the Rap Type stuff aside from Raksu who are of the Rap type who are different because their Tempo and Lyrics are easy to understand unlike some so actually they are good both Live and Auto tuned if people are not usually great fans of Rap, although not meaningful ,such as how Books can be as I have just said, I think you like it or you’ll not be bothered about it ,that will always be a Personal Preference thing I am also not a great Fan of where Bands use their Names in material to go more public,. it’s like a Human propaganda type thing but away from that with Artist performance and writing Books as is the same with West end Productions there’s always going to be Memory Skill required and lots of it alongside of the outside of the Box stuff within that others may not see or maybe even sometimes never even think about E,G Well for Writing Books it’s like Appropriate Moods ,Time, Language or for want of a better word Diction ,Respecting privacy Copyright and again the already spoken about in earlier Paragraphs type stuff that I won’t go into again o would be pointless but in Artists it’s Lyrics and Vocal Coaching and or Rest Preparation and again Time and in Production it’s things like obviously Scripts ,Steps Casting Directors and Design., choreography is also Key along with Lighting .For me as a person Performing Arts isn’t my thing as in my preference would be to spectate than anything else as I could have actually done studies in it but after sitting in one trial Treloar Lesson decided against it along with three other Subjects that would irrelevant to what is written so I won’t go into them before I stuck with what I knew best anyway I C T and I think quite rightly for me because I just don’t ever see myself using it but it may have been helpful with Voice projection but no free time and Book Witting time is better for me any day, as things are always different when they are done for own pleasures, I find ,although actually ICT could be used in them all anyway to a Degree level .
Like everything ,though if I had ,have chosen to fully complete my studies, thankfully again for the last time I didn’t but ,there would have been a lot of other aspects for me to gain from and I know that but I won’t list any because that’s in the past but I know what I am thinking as well some others probably but if said Traffic Lights and or even more random but Leavers pack ,not all but some people will be on the same wave lengths and still to my Knowledge Mental stability is a much better gain leaving to me thinking beyond all of that helpful stuff so I do still think I made the right move to terminate them when I did .although over again different aspects ,I do at times Question it but not on Education and above stated grounds without again stating what but being honest that is the way that the Cookie crumbles because now that my Head is in the right place I think what was I thinking not to leave with the Pack itself ,a bit silly anyway never mind but again it’s just experiences of or throughout life
The good thing is that the place hasn't changed apart from some new faces because I now long ago rang them for something and it was nice and like I haven't really left the place .
So as I have previously said since moving on from my Studies ,there’s been the Covid outbreak hugely impacting on many but others not so much ,depending on the types of lives lived because for someone like Myself not ,too many changes happened that really needed to as Masks are out of the Question Condition wise for me apart from the good ones already spoken about so when so called freedom day on July the 19th20,21 at the very latest happens ,I just wonder whether people will just take the Mellowed approach as a new regular , again people won't know yet ,I bet some will but probably better I would say for those in the I,T sector as more opt to use it instead of commutes if they can as well as things like Retail but there's been small Business losses as well as some large and also lives lost but there's a part of me that thinks control Method in some respects, matter of perception again ,though. To be honest I think it's likely that there will be experience more Lockdowns, due to what was an extremely late UK shut down with Vaccinations that are only 80% or Transmission Effective again as Guide lined evidence if there's such thing with levels of speculations and side effects as with any Jabs and being Realistic because Covid was found it's always going to stick around and people will just Educate themselves to manage it ,sad for the many lives lost but true.
Life will always be what life is.
Even the Sixteen day Olympics and Paras in Tokyo, Japan have had to strip back slightly with Revised Dates, and Training Methods, likewise probably even Airport Staff, alongside more ,due to the Covid 19 situation ,people were hedging their bets about that going ahead ,too but it has but on a safe tested but probably a smallish somewhat level and yet it still had great leads of success, throughout .
With serious stuff now said ,I can now add that through Lockdown My family and I came across a Social Media based Musician that I have loved getting to know through obviously posting of live Music Videos and again I include very little information of personal Details for obvious reasons but with little doubt that they will know who they are after 30secons of Reading even just this Paragraph alone so thank you for your Entertainment Skills and Talents of plenty .
Whilst I have spoken a little more about past time type stuff I have to say a big thank you and well Done to the Oceans of Hope people for the offer that I took up to have a Brilliant days Sailing with you all as I said before it was a lot of fun as well as a good up lift of positive vibes for me as an individual that fell into place at the right time and it makes you humble actually and for me it was totally unexpected and lovely at the end of a Family get together. Keep it up all of you, I loved it. It was also mice to see good, Happy strong approaches to people's Abilities and less focus on Disabilities and limitations and really Diverse ,throughout ,too.
I also had control of it for a while, I almost failed to have said that by Accident, but I don't know why.
Apparently, the Access and TI Treloar Students do the Oceans of Hope, too but I think where I was a Vocational student in those days, I missed out in doing so back then so it's nice that I have anyway, however maybe this should be more I L P Based {Note to Treloar Staff please.} I should think that the same system still stands.
Even ,though I left Treloar Myself a while back as stated previously ,I felt that it was right being the person that I am as Sailing also has a Number of Benefits to it such as community Skills, Communication and Social Skills ,Team Building Skills ,General people Skills ,P M P { Physical Management Plan and Fine Motor Skills Development Skills type support for current students, among others without wishing to bore Readers to Death with the practical and Educational aspects sides alongside the fun and enjoyment aspects particularly those with the MS Condition as that itself is its main setup focus, actually as well as being fully Covid safe and Risk covered .
I wrote the previous page and more at risk of being slightly Loquacious, meaning that I have a clear tendency to Communicate a lot but that’s fine as I think that those that know me probably know that I am that way already anyway whether I am Writing or not giving a better picture of who I am as a collective insight further into my personality for those who may not as such it just so happens that I am and or was if [ Past tense ] able to incorporate it to a degree into this Book even if it’s an unintentionally done kind of thing but regardless it’s a matter now included as I have kind of already Munched in places but Whilst I spoke about Boats and Covid Together as they semi link well in order of time ,there is now another outbreak from Africa hitting the people of the UK and France of small pox otherwise known as Monkey pox giving implications of Blisters and other Medical issues alike so full PPE is once more advised so people from the Boat Team will need to be careful as will others and again this is something that not many know ,too much about as yet with advice again being not to worry but I find it interesting how suddenly things come about but so far well ,I think or at least to my current knowledge anyway there are for less Data Recordings than the Three Covid’s already identified but still probable to rise through what looks to be Skin to Skin contact as oppose to being Airborne so far anyway so again it’s a watch this space type thing
With agreement given upon since meeting him several times in different Venues ,post living with Covid as people now call it I can now give a Name and say, Richie Triangle, Musician Thank you again for the good time spent and again please keep creating the original Tracks as they are and always will be the best ,The Tracks like the ones that you’ve previously created, for obvious reasonings I won’t enclose any Tittles as I would like to , I won’t but all are very meaningful and well within .This Paragraphing may be to some ,a little discombobulated perception dependent but It isn’t in some ways but at least Publicity is semi out there for you even if it’s just a little more and I am sure that we will cross paths again soon, likewise I still have the Fanclub Sticker from you stuck on my Pink Manual Wheelchair ready for then as it’s my Richie Triangle Bling ,I just thought that I would add that in quickly ,too because well I may as well.
Again Discombobulating this maybe to some but because times semi connect within the mix of Covid time frames, I will add this now, having previously spoken about my Authoritative support having now reached above double figures for me company wise these have since escalated further ,however this time I feel it’s right not to include any information for several reasons as much as I’d love to but to say ,Well Done ,thank you ,brilliant job and happy vibes well given , again I’d worry if the Question marks as in people didn’t know that this Paragraphs been written for them and why it’s been done like so, I had to ,however say something only just in a professional way quickly and I am going to reluctantly leave that there ,I think as we go through the obvious channels known to us but not all but I don’t like being a closed Book but sometimes it’s right ,cliff edging but ,oh well that’s okay as some of the Authorities have in many respects been Deleterious at times ,in fact if you don’t know what that means don’t worry but if you do that’s also fine with me but whether I'd agree with it all 100% in my own right mind is a different thing but I guess needs must at times. Respectfully that’s the right way to Type that to include it ,I think anyway for public Reading at this moment in time.
Still quickly touching on that same level page but not as such,I have just done just an on the sidelines meet and great for just a Twelve week Recreationally Linking type thing just for what will be a Once times Weekly ,Two Hour slot, whereby Mum and I can not be as one for a bit anyway for want of a better way to Type it at least just so that it is written in somewhere and in some way basically it comes as Day to day routines for us at times can be somewhat full on through various things so for us it just evens things out a tad, so for me ,Quick Nail Painting times ,Lunches and stuff like maybe some quick 18 Minutes Oven Cake Baking apparently between so maybe I didn’t need to drop my2003 Valence Food studies back in School days after all ,however for Mum it’s just a quick Break and time to maybe visit Friends so almost like let’s say an English form of Volcare but not quite same difference anyway from my Analysis if they also don’t mind a mention quickly also previously had past Links with me and Family for a time on and off so hopefully okay but again we will watch this space and see as I always say .So the last couple of Paragraphs now also Link content wise again as well very cleverly but yes it’s true that it does to a Degree anyway but it all kind of has to because it has come from me .
It probably wouldn’t be a choice made by me if it was an optional thing to me alone but I can’t be totally selfish but it’s linked with having my condition and needs ,I guess but it is what it is so anyway I will as I said throw myself in open minded view and see what happens I guess there has to be a little give or take sometimes in life so that’s fine and as it so happened that time frame wasn’t completed as setups anyway changed for the better.
Valence was another one of my many places of Education if anyone is unaware still. just so that I have added that in ,in a fashion because I am just keeping it to a Minimum I think because other than Social aspects there’s not a great deal to really be said other than Tutors tried to make the place Academic enough for me as a very bright person in possibly the best way that they could buy i fully understood level Differences were big jumps. .Connectedly almost kind of thing but not really as different aspects of the place now being spoken about but Nutritionally as random as this Reads, another of my Friends from there for some reason has a vivid memory of me back in the day Eating 13 Fish Fingers and Chips over the space of a single Mealtime sitting ,one Friday Weekend stay so I have included that upon Request but the ironic factor of that is that I now detest Food form of Fish anyway . I can’t think Why but anyway .
Enough said on that front for now at last as I now just focus on the me being the person that I actually went to be as opposed to anything else so I am in more of a position whereby if I want my personal space ,I still can do but if I want and I won’t call it independence but supported Self Dependence I also can because as someone quite rightly pointed out the other day that for us as people with added extras, that is more what the situations are but to be this happy now with everything in place has taken a lot without going into Details before this or that it wasn’t easy but I can’t thank some people enough now that I see the benefits ,whether I agreed with some analysts ,well that’s a different thing but anyway with all that aside I’m happy Marie again.
I don't want this Book to come across like a sob story ,my perception is that of an individual and my life is made up of things that others may not be but it is what it is and I like some of the differences, I am actually one of the most happiest people that people are ever going to meet subtracting some of the obvious negatives written that I would rather really lee out but as it's life some have ,had to obviously be enclosed at versions points amongst the fun times shared as the Chapter comes to end ,Perception is something that doesn't stop so no doubt it will be mentioned again in further Chapters .
Chapter Two,
As ever with the future it's different from person to person so it is difficult to determine but the hopes for Everyone are and or is for that of a bright and Happy one with lots about to take place and that of course is no different for my family and I. I won't disclose any as yet but with time I will. So as promised I can now add already that I have a new different sort of Room Mate, Pet Friend who and ,or that I absolutely love playing with ,coddles and kisses of Millions with and generally looking after and spending my time with ,much like my other already mentioned Pets, she's an Amazing & cute little bundle of Marie fun for me but unfortunately for obvious personal kind of reasons as much as I would like to not ,really, I am keeping information to myself but still I wanted at least a little written in very quickly as I couldn't not have done so, I just feel that is both appropriate and right to place in like so and add more on later with other subject matters when things happen and times link further as such
I have also not long been to a Showing in the Town near to where I or we should I say live of the House of Jo Jo, speaking of connecting times, Family plus one took me to that and it was really good. We also now would like to go and see more shows with him in at a later Date ,this time with a Family member who unfortunately last time wasn't able to make it ,due to a crop up of something else taking place so we had to assess ,adapt and overcome ,kind of thing but sometimes things happen ,so anyway we plan trip to soon so hopefully that will be just as good for us all.
There are other things soon to be happening so this Book is set to be a good ,long Read over time but for time enough said ,that is until more gets or is written so for now the Book is as it is an when more comes everything will connect still ,this is where you'll all know whether or not you're strong Readers as if so you'll be able to keep following just from ,that alone having been written.
What I will say anyway is that I have been doing a lot of Sea Front visits of late, this differ from Week to week in more ways than one from the people to the views and, or Food and things.
As I pause in some respects ,whilst the rest of life to unfold it is apparently factual that most Writers don't even complete Chapter one for different reasons so I already definitely fallen into the same trap as many ,whereby I am someone that has maybe even ,too much to say so for me ,I think that it is different .I think that actually it is more helpful to space out Typing because people then don't get mental Blocks if people find themselves not to be like me .
With a little Typing gap now had and used well ,I can now say more ,all be it just a little actually if I am honest for what has happened and/ or what's about to happen since.
It has been a while coming but as a Family we are looking forward to Little Adventures away very soon ,not ,too for but far enough away to take just a little Break from the usual day to day routine stuff as Everyone needs that at times so that hoping should be fun,for us us all but I think that I will miss my Pet friends for a short time ,whiltst doing but it's going to mean lots of Treats for them all on our return Home ,no doubt so it's okay and all excitng to following something else with a very quick mention in a kind of fashion again but without saying a lot really for again obvious reasonings so again this should connect as you as people Read on a little further in ... My time away was one to remember in many ways full of fun with plenty of activities, food and family time spent among some wildlife area access and things alike and trying really hard to not be Buttlins camp like and that it isn't so it works well concept wise so that it's difficult to not enjoy.
We as a Family have all just had a Special function from where I have enclosed just a short and sweet Speech and hopefully someone isn't going to mind the fact that Iive done so because it's a nice thing that I ,myself wrote for that alone really and I haven't asked ,I again think it makes sense with what's upcoming next I will add to just be placed in this Book like so. Unfortunately it wasn't made public ,due to Noise levels and reasons alike so I have just very quickly found it it's place as I said. I will warn,a little later there's a Name mentions but I couldn't really help that.
Hi I am Marie,Elise’s elder sister, so I have watched her growing since a tiny little baby. Holding her on my lap every 2 seconds, to going to school and skipping out after having orange squash it sounds silly but with that comes memories since those days Elise has grown to become a very bright in the intelligent person who I believe will excel in future even more then she already has so I think that the batter sea family are very lucky people that they have Elise.
With the Speech now enclosed and yet another lovely day as planned it's essential to just say thank you and then revert back to Me and that of the excitement of Equipment because Chronology wise ,I have been through no fault of my own without a full needs meet of Chair in the respect of Maximum comfort and Optimum Mobility since basically leaving College ,that is up until recently with a different Team of professionals who have introduced me to the spex as someone with as I have mentioned before a range of Postural Management needs that the spec will both correct and accommodate over time but it's also not possible without such pleasurable ,kind ,caring and highly trained approaches used and without Names even, though stated that I could ,I say thank you very much again as you'll know who you are keeping professional but I couldn't type this book without adding all of you in.
I have also been directly in touch with spex RE, ambassadoring for both which I can do as a success story, so much so that I am hopefully soon to become a Two times Spex user as it is a no Brainer type situation that I now am choosing to use my Spex over other provisions ,currently choosing less Mobility over comfort in a sense but not exactly because function in the current Spex is right and so I just need now to explore the same within Power Bases ,that means my Spex journey will continue into a double provision because it’s a full needs meet . The current one is a Manual set up but anyway I am like a totally different person now that it’s a full need meet now that I have the use of it anyway and I can’t really stress that enough so as much as I can help, I haven’t since used my old Power provision much. I thought that I might as well just quickly expand on that for good Measure only. So far It has been a Web based Lined form Communications type situation but it’s all good as I think that is what more and more people are doing in this day and age but whatever their wish or should I say of all parties is what I am happy doing.

So my upcoming chair will be a replica of manual as the posture is exactly the same as the manual but with control extras such as joystick and switches / buttons for driving and ICT purposes again and a possible anti dehydration system which will replace my old one which was accidently discarded or so they say but I myself don’t actually know what exactly happened but anyway it is in the process of being sorted within the new provision so that will mean that my fluid will be independent once filled up which I know from before that , that that is instantly better for me as an individual and semi help wise too, so things are slowly looking up now and getting better.
Away from wheelchairs I have also now got a provision of another device which has also taken time to get and I’m not going into reasons why but anyway I also have that now so that is also a positive aspect thing for me going ahead in all of my quests with respect to my equipment.
I also have a you tube channel(mariejohnson1921) in addition to support with this as it continuous to be ongoing for me as a progressional wise thing. For me as I figured that it was a better way of approach for me and people making things more sense with the evidential side of things, it is just me again being me but I do what works anyway.
Reverting back to Spex and that situation although in transition it is proven to be a success but has been a mission in its own right it respects of funds. Anyway, I am continuing to gain out of it’s use years uses which I so far have had positive experiences as I have already said. And have also since I feel gained yet more knowledge because I have been using it, this can only be a good thing as time goes on.
More said later and later on in writing.




